HELP NEEDED: Shiva Singh, 22, is appealing for a kidney donor, at his home in Penal during an interview with the Express last week. —Photo: DAVE PERSAD

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Shiva wants a normal life for Christmas

By Carolyn Kissoon carolyn.kissoon@trinidadexpress.com

THE only gift 22-year-old Shiva Singh wants this Christmas is a chance at a normal life. He wants to be able to return to school, land a job and have his own family.

Singh, of Goodman Trace, Penal, was diagnosed with a severe kidney ailment. His wish is to find a kidney donor before Christmas. Singh was diagnosed with Focal Segmental Glomerulosclerosis (FSGS) — a rare disease that attacks the kidney’s filtering system (glomeruli) causing serious scarring. FSGS is one of the causes of a serious condition known as Nephrotic Syndrome, the Express was told.

Singh’s mother, Radica Singh, said, “I had a normal delivery. But when my son was two years old he had a kidney infection. The doctors said it was not a severe case and will cause minimal damage to his organs.”

Singh, a mother of three, said her last child was hospitalised regularly and became an outpatient at the San Fernando General Hospital. “They stopped him from drinking milk and eating different kinds of food. He was swelling and had to do a lot of tests,” she said.

Singh said her son’s condition worsened as he turned 11, and he was transferred to the Eric Williams Medical Sciences Complex in Mt Hope.

“It was there they did a biopsy and found out he had FSGS. The doctor told me that was the worst kind of kidney disease ever,” she said.

Singh said her son was unable to attend school regularly because of his ailment, but he succeeded in passing for the Shiva Boys’ College. “But he was unable to attend school regularly and only passed three subjects.

My son has gone through so much and I wish I can help him,” she said.
Singh, an Unemployment Relief Programme (URP) worker, said her son’s body has become frail. And he survives on dialysis treatment three times a week.

Singh said her husband, carpenter Premnath Singh, and their two older children have been tested. “But the children are not compatible and my husband is unwell. We cannot find anyone who is willing to help us. We are asking anyone who is willing to help us to come and get tested and help my son. I cannot look at him fading away like this. It is hard for a mother to sit by and watch,” she said.

Singh said her son wants to be able to complete his education and pursue his dreams of playing football and cricket. Anyone willing to assist Shiva Singh can contact his mother at 647-8225 and 476-8670.
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